What is LivingwithCongenitalHeartDefects.org?
LivingwithCongenitalHeartDefects.org is a dedicated patient-to-patient support community for families with patient caregivers.
LivingwithCongenitalHeartDefects.org is powered by BensFriends.org, patient support communities for rare diseases or chronic illnesses, and is run by volunteer moderators who have caregivers.
Who can join LivingwithCongenitalHeartDefects.org?
If you are a caregiver or a family member of a patient with rare disease, consider LivingwithCongenitalHeartDefects.org your second home. LivingwithCongenitalHeartDefects.org, as well as the rest of BensFriends.org’s patient communities, is free for members to join.
What is BensFriends.org?
In 2007, Ben Muñoz suffered a rare form of stroke caused by an AVM. He was unable to find the support he needed during the most difficult time, so he created an online support community AVMSurvivors.org to connect with others like him. AVMSurvivors.org led to the founding of BensFriends.org, driven to provide patient-to-patient support communities for people living with rare diseases.
BensFriends.org is a network of patient communities for people living with rare diseases. Launched in November 2007, BensFriends.org provides valuable patient support by creating and running compassionate, responsive communities. BensFriends.org maintains dozens of patient communities and has changed thousands of lives.